Dan Haley and Jenna Gassew knew they wouldn't have long with their son after when he was diagnosed with a rare condition while still the womb. Knowing their time together would be short after his birth, the boy's parents took advantage of the time they had with him while he was still in utero, creating a list of the things they wanted to do and earning him the nickname "Bucket List Baby."
Haley and Gassew's story went viral as they were checking things off the list for their baby who was diagnosed with anencephaly. The Philadelphia couple documented the bucket list accomplishments, which included visiting sporting events, museums, national landmarks, major cities and the beach, on Facebook and amassed more than 700,000 likes.
On Wednesday, Gassew, went into labor, just a few days before her estimated Oct. 12 due date. By 2:25 a.m. Thursday morning, baby Shane was born.
"Happy birthday to our little man!" the couple wrote on their Facebook page.
Nearly six hours after entering the world, Shane died in his mother's arms.
"Today at 6:15AM, after meeting his entire family and being baptized into the Catholic faith, baby Shane died peacefully in his Mother's arms .. we are so grateful for the time that we were blessed to hold and hug our son .. the support and prayers we have received from all of you have been amazing and we want to thank each of you with all our hearts .. Shane spent his entire life in the arms of people that loved him unconditionally and I don't think you could ask for a more beautiful life then that .. he is home now with the Lord and will forever be our little miracle!" a Facebook post on the Prayers for Shane page read.
Here is a look at just a few of the things the couple did with their Bucket List Baby:
According to the Centers for Disease Control and Prevention, anencephaly is a birth defect where the baby is missing parts of his or her brain and skull. The birth defect frequently occurs before the woman even knows she is pregnant as the neural tube is forming.
Only one out of every 4,859 babies born in the U.S. is diagnosed with anencephaly, according to the CDC.
Haley told ABC News last month that when they learned of the condition in April they were devastated. But eventually they accepted it and " decided to give Shane all the love we could while we have him with us."
Read more about Shane's story on the Prayers for Shane Facebook page.